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Report on visit to Harriet Benson Memorial Hospital Lalitpur, Utter Pradesh, India by  Kim Donaldson, practice development facilitator and Lorraine Wilson, community palliative care team leader.

Journal Publications

Arends J,  Bachmann P, Baracos V, Barthelemy N, Bertz H, Bozzetti F, Fearon K, Hütterer E, Isenring E, Kaasa S, Krznaric Z, Laird B, Larsson M, Laviano A, Mühlebach S, Muscaritoli M, Oldervoll L, Ravasco P, Solheim  T, Strasser F, de van der Schueren M, Preiser J. ESPEN guidelines on nutrition in cancer patients. Clinical Nutrition 2016. In Press. IF=4.731

Kristensen A, Gronberg BH, Kaasa S, Laird BJ & Solheim TS. Does chemotherapy improve health-related quality of life in advanced pancreatic cancer? A systematic review. Critical Reviews in Oncology/Haematology. 2016 In Press IF=4.027

Hjermstad MJ, Aass N, Aielli F, Bennett M, Brunelli C, Caraceni A, Cavanna L, Fassbender K, Feio M, Haugen DF, Jakobsen G, Laird B, Løhre ET, Martinez M, Nabal M, Pardon K, Pigni A, Piva L, Porta-Sales J, Rizzi F, Rondini E, Sjøgren P, Strasser F, Tejedor AN, Turriziani A, Kaasa S. Characteristics of the case mix, organisation, and delivery in cancer palliative care – a challenge for good-quality research. BMJ Supportive and Palliative Care. 2016. In press.

Laird BJ, Fallon M, Hjermstad M, Harden S, Kaasa S, Klepstad P, McMillan D. Quality of Life in patients with Advanced Cancer – Differential association with performance status and the systemic inflammatory response. Journal of Clinical Oncology. 2016;34(23):2769-2775. IF=20.982

Fallon M, Hoskin P, Colvin L, Fleetwood-Walker S, Adamson D, Byrne A, Murray GD, Laird BJ. A randomised double blind trial of pregabalin versus placebo in conjunction with palliative radiotherapy for cancer-induced bone pain. Journal of Clinical Oncology. 2016;34:550-556 IF=18.443

Forbat, L., Haraldsdottir, E., Lewis, M., & Hepburn, K. (2016). Supporting the provision of palliative care in the home environment: a proof-of-concept single-arm trial of a PalliativE Carers Education Package (PrECEPt). BMJ open, 6(10), e012681.

Archibald, D., Patterson, R., Haraldsdottir, E., Hazelwood, M., Fife, S., & Murray, S. A. (2016). Mapping the progress and impacts of public health approaches to palliative care: a scoping review protocol. BMJ open, 6(7), e012058.

Haraldsdottir, E. (2016). Diagnosing dying including the family perception, European Journal of Palliative Care 23(1)

Lloyd, A., Kendall. M., Starr, J.A., Murray, S.A., (2016) Physical, social, psychological and existential trajectories of loss and adaptation in frail older people towards the end of life: a qualitative, multi-perspective, serial interview study. BMC Geriatrics, 16 (1), 176.

Lloyd A., Kendall, M., Carduff, E., Cavers, D, Kimbell, B., Murray, S.A., (2016) Why do older people get less palliative care than younger people? European Journal of Palliative Care 23.

Carduff, E., Jarvis, A., Highet, G., Lloyd, A., Finucane, A., Kendall, M., Harrison, N., & Murray, S. A. (2016). Piloting a new approach in primary care to identify, assess and support carers of people with terminal illnesses: a feasibility study. BMC family practice, 17(1), 1.

Laird BJ, Fallon M. Attenuating the pain flare following radiotherapy for bone pain; a new role for an old therapy? The Lancet Oncology 2015;16(15):1440-1441 IF=24.690.

MacLeod N, Fallon M, Klepstad P, Laird BJ. Pain Management in Mesothelioma. Reports of Radiotherapy and Oncology. 2015 In Press IF=awaited

MacLeod N, Chalmers A, O’Rourke N, Moore K, Sheridan J, McMahon L, Bray C, Stobo J, Price A, Fallon M, Laird BJA. F-18 FDG PET-CT Influences Target Delineation When Combined With Standard CT-Based Radiotherapy Planning in the Palliative Setting in Malignant Pleural Mesothelioma; an Exploratory Study. Reports in Radiotherapy and Oncology 2015. In press. IF=awaited

Kersten C, Cameron M, Laird B, Mjåland S. Epidermal growth factor receptor – inhibition (EGFR-I) in the treatment of neuropathic pain. British Journal of Anaesthesia. 2015;115(5):761-767. IF=4.853

Middlemiss T, Lloyd-Williams M, Laird BJ, Fallon MT. Symptom control trials in patients with advanced cancer: a qualitative study. Journal of Pain and Symptom Management. 2015;50(5):642-649 IF=3.077

Simmons C, Koinis P, Fallon M, Fearon K, McMillan D, Gronberg BH, Solheim T, Gioulbasanis I, Laird BJA. Prognosis in advanced lung cancer – a prospective study examining key clinicopathological factors. Lung Cancer. 2015;88(3):304-309. IF=3.958

MacLeod N, Chalmers A, O’Rourke N, Moore K, Sheridan J, McMahon L, Bray C, Stobo J, Price A, Fallon M, Laird BJA. Is radiotherapy useful for treating pain in mesothelioma? A phase II trial. Journal of Thoracic Oncology. 2015;10(6):944-950. IF=5.8

Chong, O. T., Critchley, H. O., Horne, A. W., Elton, R., Haraldsdottir, E., & Fallon, M. (2015). The BMEA study: the impact of meridian balanced method electroacupuncture on women with chronic pelvic pain—a three-arm randomised controlled pilot study using a mixed-methods approach. BMJ open, 5(11), e008621.

Milicevic, N., Haraldsdottir, E., Lukic, N., Baskott, J., Rayment, C., & Downing, D. (2015). Palliative care development in Serbia, five years after the national strategy. European Journal of Palliative Care, 22(1), 30-33.

Forbat, L.,. McManus, E,. Haraldsdottir, E,. (2012). The Implications of end-of-life care for the family: Findings from a qualitative study. Journal of Contemporary Family Therapy, 34,2 , p282–292

Partridge M., Fallon M., Bray C., McMillan D., Brown D., Laird B., (2012) Prognostication in Advanced Cancer; A Study Examining an Inflammation-Based Score. Journal of Pain and Symptom Management. 44, 2, p161-167.

Gray H., Adam J., Brown D., McLaughlin P. , Hill V., Wilson L. (2011) Visiting all hours: a focus group study on staff’s views of open visiting in a hospice, International Journal of Palliative Nursing 17, 11, p. 552- 560

Haraldsdottir E. (2011). The Palliative Care Research Society: facilitating research in the UK.  European Journal of Palliative Care, 18, 6, p305-307.

Haraldsdottir E. (2011). The constraints of the ordinary: ‘being with’ in the context of end- of-life nursing care. International Journal of Palliative Care Nursing, 17, 5,p 245-250.

Haraldsdottir, E., Clark, P., and Scott, M. (2010). Health-promoting palliative care arrives in Scotland, European Journal of Palliative Care, 17,3, p130-132.

Worth A., Irshad T.,Bhopal R., Brown D., Lawton J.,Grant E.,Murray S., Kendall M., Adam J., Gardee R., Sheikh A.( 2009) Vulnerability and access to care for South Asian Sikh and Muslim patients with life limiting illness in Scotland: prospective longitudinal qualitative study British Medical Journal,338:b183 doi10.1136/bmj.b183  

Cooper L., Gary H., Adam J., Brown D., McLaughlin P., Watson J (2008) Open all hours: a qualitative exploration of open visiting in a hospice. International Journal of Palliative Care Nursing 14,7 p. 334-341.

Harris F.M., Kendall M., Bentley A., Maguire R., Worth A., Murray S., Boyd K., Brown D., Kearney N., Sheik A. (2008) European Journal of Cancer Care. Researching experience of terminal cancer: a systematic review of methodological issues and approaches.

Poster and Oral Presentations

Calvard, J. Retrospective Comparative Study of Alfentanil Use within Two Inpatient Units within a Hospice Setting- factors which Affect Prescribing.

15th World Congress of the European Association for Palliative Care (2017)

 Haraldsdottir, E., Christie, L., & McArthur, J. P-12 Art and hospice care-building a strategic relationship. BMJ Supportive & Palliative Care, 5.3, A4-A5.

Calvard, J. Death and Grief online. The opportunities and challenges of incorporating digital legacies inro a palliative care setting. Hospice UK conference

Kendall M., Carduff E., Lloyd A., Kimbell B., Pinnock H., Murray S.A. “Dancing to a different tune: living and dying with cancer, organ failure and physical frailty.” BMJ supportive & palliative care 5.1 (2015)

Patterns of Multidimensional Change towards the End of Life for Frail Older People Lloyd A., Kendall M., Starr J., Murray S. BMJ supportive & palliative care 5.1 (2015)

J Logan, A Ojera, R Namwanga, R Katusabe, L Nabirye, E Haraldsdottir, M Leng, L Grant, J Downing: The Uganda Palliative Care Nurse leadership Programme: Partnership with a Hospice in the UK

Haraldsdottir E., Munday D., Manak M., Ratcliff C. and Thyle A: Mixed method evaluation of a palliative care project in rural North India

Janice Logan, Margaret Colquhon and Ailsa Espie: Person-centred palliative care education

Linda Blackie, Gail LeMasurier, Siobhan Mack, Anne Robertson and Kim Donaldson: Living with loss – ensuring people with a learning disability are supported through losses in life.

Kim Donaldson and Fiona Cruickshank: Don’t forget about me – developing a person-centred approach to caring for people with dementia within a hospice setting

Haraldsdottir E. and Christie L.: Art and Hospice Care – building a strategic relationship

MNC Educators Group. Palliative Cared Education in Lothian: Does it Measure UP? A Mapping Exercise: Lothian MNC Educators Group

St. Columba’s Hospice End of Life Care Group. ‘Location, Location, Location’ the complexity of Preferred Place of Death

Margaret Colquhoun and Joyce Templeton. Panning for gold: Ensuring an evidence base for end of life decision-making

Kemp R., Hill V. Donaldson K., Adam J., McKay J., Howie E., Wilson L., Brown H., Brown D.: DNACPR – Resuscitating Best Practice: Applying policy to practice in a hospice setting.

Pauline Gibb, Kim Donaldson and Vicky Hill: Adapting to Life after Loss – does counselling in a specialist palliative care unit make a difference?

Carla Galinsky, Kim Donaldson, Michael Paterson, Hazel Sayers: Pause for Thought – a spiritual resource for patients, families, visitors and staff.

Brown D., Partridge M., Adam J. Assessing prognosis in the Hospice: The Views of Nursing Staff

Brown D., Partridge M., Adam J., McMillan D. Prognostication in the Hospice Setting: The Usefulness of the modified Glasgow Prognostic Score

Helen Gray, Joan Adam, Tricia McLaughlin, Lorraine Wilson, Vicky Hill, Duncan Brown. Visiting All Hours? The Views of Hospice Staff on the Visiting Policy